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| The following is a list of organizations and websites where further information about prion diseases can be found: |
| National Institute of Neurological
Disorders and Stroke (NINDS) National Institutes of Health 31 Center Drive MSC 2540 Bethesda, MD 20892-2540 Phone: 301.496.5751 or 1.800.352.9424 www.ninds.nih.gov/ National Institute of Diabetes and Digestive Kidney Diseases (NIDDK) National Institutes of Health Bldg. 31 Room 9AO4 Center Dr., MSC 2560 Bethesda, MD 20892-2560 Phone: 301.496.3583 www.niddk.nih.gov information on human growth hormone Food and Drug Administration (FDA) 5600 Fishers Lane Rockvillle, MD 20857 Phone: 301.443.1130 www.fda.gov United States Department of Agriculture Food Safety and Inspection Services (FSIS) Phone: 202.720.9113 Infoline: 1.800.535.4555 www.fsis.usda.gov information on food safety, meat and related products and meat inspection United States Department of Agriculture Animal and Plant Health Inspection Service (APHIS) Phone: 609.259.5825 301.734.7799 www.aphis.usda.gov information on animal health and BSE The Creutzfeldt-Jakob Disease Foundation, Inc P.O. Box 5312 Akron, Ohio 44334 National CJD HelpLine 1.800.659.1991 Fax 330.668.2474 www.cjdfoundation.org A non-profit organization promoting patient/family support, education, awareness, public policy awareness and research for all forms of CJD National Prion Disease Pathology Surveillance Center Dr Pierluigi Gambetti, Director, Institute of Pathology Case Western Reserve University 2085 Adelbert Rd. Cleveland, Ohio 44106 Phone: 216.368.0587 Fax: 216.368.2546 www.cjdsurveillance.com email: cjdsurv@po.cwru.edu CJD Insight, Information & Support Organized for Familial CJD Deana Simpson, RN, Founder & Director Phone: 586.786.6260 www.cjdinsight.org Centers for Disease Control and Prevention (CDC) 1600 Clifton Road Atlanta, Georgia Phone: 1.800.311.3456 or 404.639.3396 www.cdc.gov CJD Voice Moderator, Dorothy Kraemer www.cjdvoice.org Online discussion, support, and information site National Organization for Rare Diseases (NORD) P.0 Box 8923 New Fairfield, CT 06812-8923 Phone: 203.746.6518 or 1.800.NORD (6673) Fax: 203.746.6481 www.rarediseases.org CJD Aware! 2527 South Carrollton Ave. New Orleans, LA 70118-3013 Phone: 504-861-4627 http://www.cjdaware.com cjdaware@iwon.com; info@cjdaware.com |